Author Archives: Rachel

June 8th, 2018 by | Tags: , , | No Comments »


 “Every great dream begins with a dreamer. Always remember, you have within you the strength, the patience, and the passion to reach for the stars to change the world.” ~Harriet Tubman We have succeeded, in […]

November 18th, 2017 by | Tags: , , | No Comments »

Dorie Shapiro has Usher 1F, and her family is working to help find a cure. Please join the Shapiro family for the second annual Touchdown for Sight on December 17, 2017, beginning at 11 AM. […]

November 18th, 2017 by | | No Comments »

By Livia Carvalho, Ph.D. The road towards testing gene therapy treatment strategies for Usher 1F has recently been joined by a new collaborative effort between research labs in the US and Australia. The labs of […]

November 18th, 2017 by | Tags: , | No Comments »

This fall, 400 riders in 13 spin studios around the United States cycled for a cure for Usher 1F. Spearheaded by Jared Root, father to Zachary who has Usher 1F, and his two friends and […]

November 18th, 2017 by | Tags: , | No Comments »

During 2017, we doubled our number of funded research labs, adding two new researchers, Zubair Ahmed, Ph.D., at the University of Maryland, and Livia Carvalho, Ph.D., at the University of Western Australia. Drs. Ahmed and […]

November 18th, 2017 by | Tags: , , | No Comments »

By Zubair Ahmed, Ph.D. Zubair Ahmed, Ph.D., has been researching Usher 1F for many years. He was a post doctoral student and part of the team at the NIH that, in 2002, discovered the most […]

June 7th, 2017 by | Tags: , | No Comments »

In the summer of 2012, at an Usher Syndrome Coalition conference, the Chief Research Officer of Foundation Fighting Blindness, Dr. Stephen Rose, spoke, providing an update on the latest Usher Syndrome research. He mentioned progress […]

July 2nd, 2016 by | Tags: , | No Comments »

Rachel Root, a mother of a four year old boy with Usher Syndrome Type 1F, shares her experience in receiving her son’s diagnosis of Usher Syndrome Type 1F and raising a child with Usher Syndrome […]

June 29th, 2016 by | Tags: , | No Comments »

We just sent out a newsletter this month sharing the latest updates on our foundation.  Please click here to read the newsletter.

June 27th, 2016 by | Tags: | No Comments »

Brendan Creemer, age 17, who has Usher 1F, has been accepted and will attend SSTP (Secondary Student Training Program), a summer program at the University of Iowa for a five-and-a-half week research internship program for […]

June 20th, 2016 by | Tags: | No Comments »

My name is Jaime Recht. I live in Maryland but am a native of New York City. My sister and I were born in the mid-to-late 1960’s with Usher Syndrome Type 1F. One day when […]

June 20th, 2016 by | Tags: , | No Comments »

Monte Westerfield, Ph.D., and his team at the University of Oregon Institute of Neuroscience is developing the first animal model of Usher Syndrome type 1F to display vision loss.  We interviewed him to provide you […]

November 24th, 2015 by | Tags: | No Comments »

We just e-mailed all of our supporters our first newsletter.   Click here to read the newsletter.

May 9th, 2014 by | Tags: , | No Comments »

Vision for a Cure has been featured in two publications in the past month: The Jewish Week – A Family’s Eyes On The Prize: When Rachel Chaikof travels the world, she prefers to go alone. Instead of having […]

November 19th, 2013 by | Tags: , | No Comments »

Usher Syndrome Registry is now available in Hebrew! Do you know anyone who primarily speaks Hebrew and has Usher Syndrome? Please tell them about the registry and get their names in the database! It will […]