Stories

Tzila

When I was born, my father thought I was perfect. My mother knew that something was wrong, but she couldn’t put her finger on it. This was in 1986, and newborn testing was sparse, often […]

harry8

This beautiful five year old boy is Harry Gabriel Feller, born in June 2011. We found out Harry was congenitally deaf when he was seven days of age. This was through the early EEG brainwave […]

Steven

Steven Frank was born profoundly deaf in Philadelphia. His father was a wholesale lighting salesman and his mother was a bookkeeper. His parents wanted him to get an early childhood education and found that the […]

Yaara-1

I am 46 years old, living in Hod Hasharon, Israel, in central Israel 30 minutes north of Tel Aviv. I am married and the mother of a 12-year-old hearing daughter. I was born in Haifa, […]

zachary-3-2

My name is Rachel and I am the mother of an adorable, funny, happy energetic 4-year-old little boy. Zachary was born profoundly deaf. This was a huge shock to our family.  We had never even […]

Lori

I was born in Connecticut. By the time I was a year old, my parents realized that I could not hear. I attended the American School for the Deaf in West Hartford, Connecticut. When I […]

unnamed-1

I am always proud to be who I am. “I would not let double disability affect and/or limit my ability to do many things on a daily basis — just do the best I can.” […]

Caryn

I have been living independently in Seattle for 17 years. My motto is that DeafBlind people can do everything except hear and see. I have taken on many leadership roles within the local DeafBlind community. […]

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My name is Anna Khutoryan, and I am a proud Ashkenazi Jew.  My family found out that I was born deaf when I was a year old.  They also noticed that my balance was weak, […]

Brendan

Brendan was born in 1999 and diagnosed as profoundly deaf at birth. We had no family history of deafness but were told we were lucky he as “just deaf”. Over the next two years we […]

mordy

Shalom! My name is Mordechai Weis, but everyone calls me Mordy. I am 37 years old and was born profoundly deaf.  I have Usher Syndrome Type 1F.   I am originally from New York, but […]

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(Dorie, left, with her family) As most of you probably know, Usher 1F Collaborative raises money to help support and fund research for cures for the disease that I have – Usher’s Syndrome Type 1F. Concerning […]

jessica

In medical TV dramas, such as House, Grey’s Anatomy, and ER, we often meet characters who come in with mysterious diseases and illness. When they come into the hospital, they are often complaining of symptoms […]