June 8th, 2018 by | Tags: , , | No Comments »

 “Every great dream begins with a dreamer. Always remember, you have within you the strength, the patience, and the passion to reach for the stars to change the world.” ~Harriet Tubman We have succeeded, in […]

January 26th, 2018 by | | No Comments »

David R. Cox Scholarship for Rare Compassion This is a terrific opportunity to educate up and coming physicians about Usher 1F and to interest more researchers in helping us find a cure. If you have […]

November 18th, 2017 by | Tags: , , | No Comments »

Dorie Shapiro has Usher 1F, and her family is working to help find a cure. Please join the Shapiro family for the second annual Touchdown for Sight on December 17, 2017, beginning at 11 AM. […]

November 18th, 2017 by | | No Comments »

By Livia Carvalho, Ph.D. The road towards testing gene therapy treatment strategies for Usher 1F has recently been joined by a new collaborative effort between research labs in the US and Australia. The labs of […]

November 18th, 2017 by | Tags: , | No Comments »

This fall, 400 riders in 13 spin studios around the United States cycled for a cure for Usher 1F. Spearheaded by Jared Root, father to Zachary who has Usher 1F, and his two friends and […]

November 18th, 2017 by | Tags: , | No Comments »

During 2017, we doubled our number of funded research labs, adding two new researchers, Zubair Ahmed, Ph.D., at the University of Maryland, and Livia Carvalho, Ph.D., at the University of Western Australia. Drs. Ahmed and […]

November 18th, 2017 by | Tags: , , | No Comments »

By Zubair Ahmed, Ph.D. Zubair Ahmed, Ph.D., has been researching Usher 1F for many years. He was a post doctoral student and part of the team at the NIH that, in 2002, discovered the most […]

September 25th, 2017 by | | No Comments »

The following article appeared in Rye Brook’s Hamlet Hub. Click here to see the original story. One of the best things about being an editor is the ability to share knowledge and educate the public […]

September 16th, 2017 by | | No Comments »

Rachel Chaikof and Usher 1F Collaborative are featured in Moment Magazine’s September/October 2017 issue: The Road to Discovery

June 7th, 2017 by | Tags: , | No Comments »

In the summer of 2012, at an Usher Syndrome Coalition conference, the Chief Research Officer of Foundation Fighting Blindness, Dr. Stephen Rose, spoke, providing an update on the latest Usher Syndrome research. He mentioned progress […]

November 29th, 2016 by | Tags: | No Comments »

Read about Harry Feller, age 5, who has Usher 1F, and his family’s efforts to fund research for a cure in Melbourne, Australia, where they live. Click here to read the article.

November 29th, 2016 by | | No Comments »

Read our November 2016 newsletter and please consider us for your generous #GivingTuesday donation.

November 27th, 2016 by | Tags: | No Comments »

By Brendan Creemer I had the opportunity this past summer to attend the prestigious Secondary Student Training Program (SSTP) at the University of Iowa and work in the Wynn Institute for Vision Research alongside professors […]

November 27th, 2016 by | Tags: | No Comments »

By Rachel Chaikof Rachel Chaikof is a 29-year-old woman who has Usher 1F. A month ago, she returned to the U.S. after completing two years of service with the Peace Corps in Cameroon, Africa, where […]

July 2nd, 2016 by | Tags: , | No Comments »

Rachel Root, a mother of a four year old boy with Usher Syndrome Type 1F, shares her experience in receiving her son’s diagnosis of Usher Syndrome Type 1F and raising a child with Usher Syndrome […]

June 29th, 2016 by | Tags: , | No Comments »

We just sent out a newsletter this month sharing the latest updates on our foundation.  Please click here to read the newsletter.

June 27th, 2016 by | Tags: | No Comments »

Brendan Creemer, age 17, who has Usher 1F, has been accepted and will attend SSTP (Secondary Student Training Program), a summer program at the University of Iowa for a five-and-a-half week research internship program for […]

June 20th, 2016 by | Tags: | No Comments »

My name is Jaime Recht. I live in Maryland but am a native of New York City. My sister and I were born in the mid-to-late 1960’s with Usher Syndrome Type 1F. One day when […]

June 20th, 2016 by | Tags: , | No Comments »

Monte Westerfield, Ph.D., and his team at the University of Oregon Institute of Neuroscience is developing the first animal model of Usher Syndrome type 1F to display vision loss.  We interviewed him to provide you […]

June 20th, 2016 by | Tags: , | Comments Off on Update on Our Progress

I want to thank you for your generous support of Usher 1F Collaborative and provide you with an update on our exciting progress. As you know, when we began our efforts, despite significant research for […]