In the summer of 2012, at an Usher Syndrome Coalition conference, the Chief Research Officer of Foundation Fighting Blindness, Dr. Stephen Rose, spoke, providing an update on the latest Usher Syndrome research. He mentioned progress […]
Read about Harry Feller, age 5, who has Usher 1F, and his family’s efforts to fund research for a cure in Melbourne, Australia, where they live. Click here to read the article.
Read our November 2016 newsletter and please consider us for your generous #GivingTuesday donation.
By Brendan Creemer I had the opportunity this past summer to attend the prestigious Secondary Student Training Program (SSTP) at the University of Iowa and work in the Wynn Institute for Vision Research alongside professors […]
By Rachel Chaikof Rachel Chaikof is a 29-year-old woman who has Usher 1F. A month ago, she returned to the U.S. after completing two years of service with the Peace Corps in Cameroon, Africa, where […]
Rachel Root, a mother of a four year old boy with Usher Syndrome Type 1F, shares her experience in receiving her son’s diagnosis of Usher Syndrome Type 1F and raising a child with Usher Syndrome […]
We just sent out a newsletter this month sharing the latest updates on our foundation. Please click here to read the newsletter.
Brendan Creemer, age 17, who has Usher 1F, has been accepted and will attend SSTP (Secondary Student Training Program), a summer program at the University of Iowa for a five-and-a-half week research internship program for […]
My name is Jaime Recht. I live in Maryland but am a native of New York City. My sister and I were born in the mid-to-late 1960’s with Usher Syndrome Type 1F. One day when […]
Monte Westerfield, Ph.D., and his team at the University of Oregon Institute of Neuroscience is developing the first animal model of Usher Syndrome type 1F to display vision loss. We interviewed him to provide you […]
I want to thank you for your generous support of Usher 1F Collaborative and provide you with an update on our exciting progress. As you know, when we began our efforts, despite significant research for […]
April 28th, 2016 by Melissa Chaikof | | Comments Off on Letter to Our Donors
I want to thank you for your prior support of Usher 1F Collaborative and provide you with an update on our exciting progress. As you know, when we began our efforts, despite significant research for […]
We just e-mailed all of our supporters our first newsletter. Click here to read the newsletter.
By Jessica Chaikof How many of you went out to see the super moon lunar eclipse that happened this past late September evening? I decided to take a break from studying Organic Chemistry to see […]
By Anna Khutoryan Communication I grew up in both the hearing and deaf worlds. Communication is very important to me. My native language is Russian. I communicate orally with my parents and family. I have lip reading […]
Vision for a Cure has been featured in two publications in the past month: The Jewish Week – A Family’s Eyes On The Prize: When Rachel Chaikof travels the world, she prefers to go alone. Instead of having […]
Usher Syndrome Registry is now available in Hebrew! Do you know anyone who primarily speaks Hebrew and has Usher Syndrome? Please tell them about the registry and get their names in the database! It will […]