Tag Archive: News

November 29th, 2016 by | Tags: | No Comments »

Read about Harry Feller, age 5, who has Usher 1F, and his family’s efforts to fund research for a cure in Melbourne, Australia, where they live. Click here to read the article.

November 27th, 2016 by | Tags: | No Comments »

By Brendan Creemer I had the opportunity this past summer to attend the prestigious Secondary Student Training Program (SSTP) at the University of Iowa and work in the Wynn Institute for Vision Research alongside professors […]

November 27th, 2016 by | Tags: | No Comments »

By Rachel Chaikof Rachel Chaikof is a 29-year-old woman who has Usher 1F. A month ago, she returned to the U.S. after completing two years of service with the Peace Corps in Cameroon, Africa, where […]

July 2nd, 2016 by | Tags: , | No Comments »

Rachel Root, a mother of a four year old boy with Usher Syndrome Type 1F, shares her experience in receiving her son’s diagnosis of Usher Syndrome Type 1F and raising a child with Usher Syndrome […]

June 29th, 2016 by | Tags: , | No Comments »

We just sent out a newsletter this month sharing the latest updates on our foundation.  Please click here to read the newsletter.

June 27th, 2016 by | Tags: | No Comments »

Brendan Creemer, age 17, who has Usher 1F, has been accepted and will attend SSTP (Secondary Student Training Program), a summer program at the University of Iowa for a five-and-a-half week research internship program for […]

June 20th, 2016 by | Tags: | No Comments »

My name is Jaime Recht. I live in Maryland but am a native of New York City. My sister and I were born in the mid-to-late 1960’s with Usher Syndrome Type 1F. One day when […]

June 20th, 2016 by | Tags: , | No Comments »

Monte Westerfield, Ph.D., and his team at the University of Oregon Institute of Neuroscience is developing the first animal model of Usher Syndrome type 1F to display vision loss.  We interviewed him to provide you […]

June 20th, 2016 by | Tags: , | Comments Off on Update on Our Progress

I want to thank you for your generous support of Usher 1F Collaborative and provide you with an update on our exciting progress. As you know, when we began our efforts, despite significant research for […]

May 9th, 2014 by | Tags: , | No Comments »

Vision for a Cure has been featured in two publications in the past month: The Jewish Week – A Family’s Eyes On The Prize: When Rachel Chaikof travels the world, she prefers to go alone. Instead of having […]