Tag Archive: Newsletter

November 18th, 2017 by | Tags: , , | No Comments »

Dorie Shapiro has Usher 1F, and her family is working to help find a cure. Please join the Shapiro family for the second annual Touchdown for Sight on December 17, 2017, beginning at 11 AM. […]

November 18th, 2017 by | Tags: , | No Comments »

This fall, 400 riders in 13 spin studios around the United States cycled for a cure for Usher 1F. Spearheaded by Jared Root, father to Zachary who has Usher 1F, and his two friends and […]

November 18th, 2017 by | Tags: , | No Comments »

During 2017, we doubled our number of funded research labs, adding two new researchers, Zubair Ahmed, Ph.D., at the University of Maryland, and Livia Carvalho, Ph.D., at the University of Western Australia. Drs. Ahmed and […]

November 18th, 2017 by | Tags: , , | No Comments »

By Zubair Ahmed, Ph.D. Zubair Ahmed, Ph.D., has been researching Usher 1F for many years. He was a post doctoral student and part of the team at the NIH that, in 2002, discovered the most […]

June 7th, 2017 by | Tags: , | No Comments »

In the summer of 2012, at an Usher Syndrome Coalition conference, the Chief Research Officer of Foundation Fighting Blindness, Dr. Stephen Rose, spoke, providing an update on the latest Usher Syndrome research. He mentioned progress […]

June 29th, 2016 by | Tags: , | No Comments »

We just sent out a newsletter this month sharing the latest updates on our foundation.  Please click here to read the newsletter.

November 24th, 2015 by | Tags: | No Comments »

We just e-mailed all of our supporters our first newsletter.   Click here to read the newsletter.