Introducing Our New Logo
We would like to share our new logo, which resulted after months of discussion among Usher 1F patients, families, and Usher 1F Collaborative board members. We wanted a logo that was more symbolic of both Usher 1F and of our work for a cure. In addition, we wanted to recognize that, while the most prevalent Usher 1F mutation is one that runs among those of Ashkenazi Jewish descent, we also have several families working with us whose mutations are more rare though very much still Usher 1F. In addition, unfortunately, there are over 100 identified Jewish genetic diseases, and so we wanted our logo to be more specific to Usher 1F.
Our new logo contains three symbols:
1. An eye. It is the progressive vision loss of Usher 1F that we are working so hard to
cure.
2. The eternal flame or eternal light: While a symbol from Judaism, it is one that is
widely applicable to all with Usher 1F, for whom we want to keep light ever present.
3. DNA: The focus of our work is funding medical research to reverse or halt the
effects on vision of the genetic mutations that cause Usher 1F.
We send a huge thank you to Rebecca Berman of Berman Branding, who designed our new logo, working patiently with us through several options and then countless design tweaks.
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Help Us Raise Awareness
June 20th is the longest day of the year, the day when we enjoy the most light. Thus, we have chosen today to introduce our new logo, symbolizing our work to achieve lifelong light for those with Usher 1F. Please help us raise awareness of Usher 1F and spread the word of our work for a cure by sharing the hashtags #lifelonglight #usher1f with a photo from your phone or camera that shows light. Be creative - We can't wait to see all your photos!
Photo credit: Rachel Chaikof
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Usher 1F Collaborative in the News
Usher 1F Collaborative made the front page of the Times of Israel, focusing on our Chan Zuckerberg grant and our efforts and progress toward a cure.
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"Learning online is so much more of a challenge for Zachary. He cannot hear as well, see as well, and is struggling to learn to his potential." ~Rachel & Jared
Living with Usher 1F During the Coronavirus
As the world navigates this unprecedented and challenging time, we are hyper aware of the additional burden placed upon those living with Usher 1F. The ways in which the world has adjusted during this global pandemic have been broad and swift. Unfortunately, this means that our community feels an extra impact.
"Because of the coronavirus, I am losing my race against time to travel and see the world." ~Anna
"The coronavirus has affected me by making me feel more isolated than I already am due to Usher 1F." ~Jessica
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Introducing Erica N. Miller
Having worked for a number of years in various client-facing roles both in the nonprofit world and the field of consulting, Erica is thrilled to join the Usher 1F Collaborative. In her new role, she will be responsible for building relationships with Jewish communities and other potential funders and collaborators throughout the country, coordinating fundraising efforts with private and corporate donors, and liaising with key stakeholders.
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Dorie Shapiro - Usher 1F Ambassador
Dorie Shapiro has been involved with Usher 1F Collaborative since our founding. She has been a terrific and enthusiastic fundraiser. Most importantly, though, she provides a needed voice for our foundation, that of a person living with Usher 1F.
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Amplifying #Usher1F through Social Media & Amazon Shopping
We hope that you have connected with us through social media! Especially in these times, it is helpful to stay connected through these outlets. To amplify our mission, please share our social media content with your friends, family, and wider online community.
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Thanks again for your support!
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